Archive for July, 2008
Happy Ending
Baby Faith turned one-month old yesterday. In China, when babies turn to one-month, parents usually have big party by inviting the whole family to celebrate together. Well, for Faith, the best news is that she is discharged today and she gets to go into loving foster family. She is going to get lots of love! And by the way, she got a new haircut today too! Most babies cried during hair shaving, but our Faith seeemed to enjoy it as much as like enjoying a head massage! Look at her little tongue!
Whenever thinking about the first day of learning about Faith, I still have goosebumps all over me. Looking at how healthy, how beautiful, how happy and how precious she is, I still find it hard to believe this baby did work through miracle and survived beautifully!
This is just like happy ending for movies. I am afraid even hollywood’s best writers can’t even come up with such great storyline.
I am so grateful to all the people who have been part of little Faith’s life. It is all these people who helped build this happy ending! Once again, thanks to Faith’s orphanage staff, who were so quick and so careful in transfering Faith to Shanghai. Thanks to Dr Wu, Dr Hong and their team for saving this precious baobei’s life. Thanks to the donors who quickly came up with all the funds within 24 hours after they learned about Faith. Thanks to Baobei volunteers who deliver baby supplies and send good wishes. Thanks to Faith’s foster family who will shower Faith with TLC!
Let’s go through some pictures during Faith’s whole hospital stay. I hope you get to experience the joy as much as I do by seeing how this baby is healed.
Comments are off for this postSleeping Prince
Baobei foundation has been getting quite a number of new-born children with critical need this summer. Andrew is one of them. He arrived at 7 days old, with an infected spinal bifida that looked like it would burst anytime.
It was raining so hard the morning when Andrew arrived. We had to hold him and stood in lines here and there to get his admission paperwork done, but the whole time he was sleeping sound in his blanket until Dr Bao had to check on his spinal bifida, he cried out loud and showed his “anger” to the unpleasant disturb. But as soon as it was done, he went back to his good dreams.
As you know, hospital stay is certainly not fun for these children. Babies cry here and there in the hospital all day long. The funny thing is that Andrew was roommates with 3 other children, and they are over 10 years old. He slept through his day while the other teenagers cried because of injection. Andrew didn’t even bother to wake up and showed some sympathy. However, he did cry during injection, but have you seen a kid who could use a couple of seconds to catch some sleep between injections? That is our Andrew! That’s why we call him “Sleeping Prince”.
Andrew’s surgery went very well. The doctor is pleased that the surgery happened in time before any nerve damage and symptoms would show up. The doctor is also pleased that he slept most of the time so his incision is healing quite well! We are so happy for our “Sleeping Prince”. We hope he will “wake up” with a bright and exciting future waiting for him!
Dialogue between “camera” and babies
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Camera says: Hello baby Hui.
Hui says: hmmm.. I am tired. Don’t disturb. The medicine for my CT scan is getting my dizzy. Not in a mood for pics.
Camera says: But you look cute too when you look sleepy.
Hui says: I am serious!! I AM SLEEPY!
Camera says: Just one picture please.
Hui says: Now I am not sleepy, I AM MAD!
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Camera says: Hello Matthew!
Matthew says: Who are you? Hey, don’t take my picture. I warn you.
Camera says: Come on, you are so cute and I want your picture.
Matthew says: Hey, I would grab you away if you don’t listen.
Camera says: Okay okay, I will run away now.
Matthew says: Hey, see how far you can run. I am chasing you now!
I played Faith’s “mom” today
My job brings me a lot of emotional moments. However, today I experienced such a moment that’s way beyond words could describe.
Faith had her surgery today to close her abdomen. She was taken from NICU straight into OR early in the morning. The whole time she was in OR I was at the hospital too, but busy with a sick fostered baby who had to come back to hospital. Around 1pm, I was still with this other baby but on the same floor where the OR is. That was when I realized “Oh my gosh, I should go check out Faith to see if her surgery was done”. Usually children we help would have their caregivers who company them from the orphanages, they would be sitting outside of the OR and wheel the baby back to the ward together with the nurse. Since we were told that Faith would stay at NICU during her whole hospital stay, we didn’t keep her caregiver in Shanghai. So she had no one waiting for her outside of the OR. Thinking of that, I excused myself away from this other baby and the fostered mother, and ran up to the OR. However, I was told her surgery was done. I was so disappointed at myself then.. feeling terrible that I failed Faith.
While I walked out of the OR waiting area, still feeling sad, I ran into a doctor. He walked so fast past me. I thought “hmm.. maybe some emergency”. By the time I got to the hallway, I saw another doctor wheeled out a gurney with a small baby on it. This doctor quickly ran up to the gurney. When I looked carefully I realized
that’s our Faith!! I rushed up and told the doctors happily “hey.. that’s my baby”. The doctors looked a bit confused and asked me “are you the parent? We’ve been looking for you.. where have you been.. How can you leave your baby come out of OR alone?” I was so happy that I saw Faith and didn’t pay much attention to what they asked me.. I just kept saying “yes yes yes”. Then I paused and realized they thought I was the parent.. so i started to shake my head and said “no.. no.. ” All right.. at this point, these two doctors just looked at each other and seemed lost.. they probably wondered where this crazy woman was from. But who cares, I was so happy I got to wheel Faith back to NICU. Faith actually opened her eyes and looked at me, then started to moan. She moved up her little hand and rubbed her face a bit, which looked like she was rubbing away tears and complaining “where have you been”. In the elevator, I pat her gently and tried to talk to her, she quickly went back to sleep again.. I assume she wasn’t mad at me anymore.
After I walked out of NICU, I was feeling quite guilty and sad. I was sad because I saw how other kids have their whole family around when they are sick, but our babies are on their own. But I am also comforted to know that we could learn from situation like this and have Baobei serve our children better, because what I am proud about Baobei is that we have such a strong local volunteer team. We are able to provide the kind of care like other children get from their family when they are sick. We are able to make these children feel they have someone like mother and father around them when they need such love the most!
No commentsWhen we work as a team, we can make big difference!
It was raining so hard in Shanghai last Saturday, I thought I would take it easy and enjoy a quiet stay-home weekend. However, around 5ish in the afternoon, I received a phone call from Kaifeng orphanage. They just found a brand-new born baby abandoned outside of the orphanage, and her intestines and stomach were exposed. They called me right away when they were holding this baby girl walking into the room. First thought I had was that we probably wouldn’t have time to save her, nor could we afford such surgery. I wasn’t sure what to do and told them I would call back asap.
After I hung up the phone, something came to my mind. I recalled an SCMC newsletter I read 2 months ago, where it talked about how SCMC successfully cured a baby who had exposed bowel. It also talked about how Dr Wu (vice director of SCMC, who’s also a surgeon) modified the “silo” bag he brought from Chicago Children’s and how this magical “bag” saved that baby’s life.
I quickly dialed Dr Wu’s cell phone. When he picked up the phone, the reception was so bad because he was on the road in Inner Mongolia. Our conversation was cut off many times like every other minute, but either he called me back or I called back right away. He told me such baby would not survive over 24 hours with their bowel exposed in the air. He also told me such surgery would only cost 20,000 - 30,000RMB. I wouldn’t believe what I heard!! Dr Wu was so kind and he called Kaifeng orphanage directly himself and taught the orphanage doctor how to take care of the exposed bowel during travel. The next thing I learned was that an orphanage doctor with a caregiver were already on the train heading to Shanghai with this new born baby girl. By this time, no one had chance to name this baby yet, so I decided to call her Faith. I guess you can figure why I picked that name.
That evening, both Dr Wu and I made many phone calls to all related people since we knew Faith would arrive around 6ish on a Sunday morning. I am so thankful that all departments related were very kind and supportive. When Faith arrived at 6.30am the next morning, she was taken into NICU right away even before I had chance to start any of her admission paperwork. As Dr Wu was still in Inner Mongolia, Dr Hong was called in real early on her day off. The security guard had picked up the “silo” bag with his backup key to “break” into Dr Wu’s office the night before already. The admission window asked me to forget about paperwork and do it later. Wow, everyone was ready and everything worked out so smoothly! They took in Faith so quickly that I hardly had chance to look at her. So I was waiting outside of ICU with the orphanage doctor and caregiver. That was when I realized they came with no personal luggage at all, but a travel bag full of bottles of sterling water and syringes. They had no time to pick up even a set of clean clothes or any snacks before they left for the train. All they wanted was to make sure that they had what they needed to keep the baby’s exposed bowel under proper care! I was so touched then! I asked them to go get some breakfast, but neither of them wanted to leave the door of ICU.
Around 9am, Dr Hong came out with great news! The “silo” bag was placed for Faith. Everything was stabilized. This bag is made from silastic. It is then suspended from the top of the baby’s bed, allowing gravity to slowly return the intestines to the abdominal cavity, aided by sequentially tying the end of the bag, like a tube of toothpaste. It is closely monitored until almost all the contents have returned to the abdomen. It will be about a week, then the baby will receive the surgery to close it.
Dr Hong took me in to see Faith. That was when I finally got to see carefully - what a beautiful and precious baby she is. She has beautiful skin. She was sleeping sound, like nothing had happened. Dr Hong was so pleased that Faith was sent to the hospital in time. If we were just a little bit late, she would have no chance. Imagine how happy I was when I heard that. I called the orphanage director when I came out of ICU. On the phone, he shared the same excitement and told me he had come up with a Chinese name for Faith. It would be Hai Ju. Hai stands for Shanghai, Ju is the city flower for Kaifeng. That means Shanghai-Kaifeng teamed up and saved her life. What a beautiful name! When I walked out of the hospital that day, the rain that had been going on and on stopped. I saw beautiful sunshine for the first time after several weeks!
I checked on Faith today and most of her bowel has returned to her abdomen. She will have her surgery this Friday to close her open abdomen, then she will recovery into a normal healthy baby. In case you wonder, yes, the surgeon would make a beautiful belly button for her, just like the city flower of Kaifeng.
Also in case you wonder if Baobei has funding to cover her surgery as she was such an emergency case, well, since the news got out on Sunday, donations have come in from all over for her. Some donors couldn’t even wait to do the bank wire and they decided to come with stacks of cash to the hospital. Some donors learned the news a bit late and got upset that they couldn’t contribute to Faith, and had me promise to let them know next time if they could help. I am so thankful! All I wanted to say to our donors is that you are definitely also an important part of this Shanghai-Kaifeng team that have brought such huge difference in this little girl’s life.
I am proud of this Shanghai-Kaifeng team. I am sure everyone will remain an important part in Faith’s life from her 1st day to this world. Let’s continue to keep her in our thoughts that she would thrive and become a healthy happy girl.
Comments are off for this postHappy Sunny Boy - Baby Qiang
Qiang is a 5-month old baby boy from an orphanage in Anhui province. He was born with a lump on his forehead. The orphanage was worried that it had something to do with his brain so they asked specifically for our neurosurgeon Dr Bao to do the surgery. As in Anhui no hospital could provide the 3D CT scan for Qiang, we couldn’t confirm if this lump connected to the brain or if there was missing skull bone involved.
After we ran the CT scan in SCMC, our worry was gone as it showed that the lump was only between the skin and the skull bone, so it should be a very simple surgery. But then another problem came up. Dr Bao is not a plastic surgeon, how to remove the lump without leaving a scar on his forehead became our new problem. He’s such a precious happy baby with a beautiful smile, leaving a scar on that happy face was not in the option! After some discussion, Dr Bao decided to do the incision from the top of his head ear to ear, that way it wouldn’t be on his forehead and hair could cover the scar. But everything has pros and cons, right? It means the healing would be more difficult that way because it would be a long cut. But I guess it was still a better option than leaving a scar on his forehead.
His surgery happened on a Thursday. When I went to see Qiang after he came out of OR, I was confused. I couldn’t find that long incision I expected to see. Instead, they only shaved away a small area of his hair and put on a dressing that was about 3cmx7cm. I also expected the recovery would be very painful because of the big trauma, but Qiang seemed very calm, as a matter of fact, he even smiled!
I ran into Dr Bao later that day. He gave me a huge smile and asked me if I noticed anything! Sure, he could tell my confused face. He told me Qiang’s surgery was actually done with endoscope. It was only a very small wound area above the original lump area. When his hair grows back, it would cover that scar, which would be very small. With the endoscope technique, the trauma for the baby is a lot less too. Now i figured why Qiang could even smile soon after surgery. How amazing is that!
The rest of the recovery went so well for him. He’s a very happy baby. You could just give him a silly look or surprised look, then you would hear his belly laugh! On his discharge date, all nurses came to take pictures with him on their cell phones. He has brought in so much happiness to the 5th floor with his sunny smiles.











